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Tuesday, 19 April 2011

  • My account has been returned! Woo hoo!

    Well, I got my account back! Woohoo! I'm so pleased. The first thing I did the moment I signed in to my old account was take a backup copy of the entire thing, so in case anything like this happens again, I will not lose contact with anyone.

    I would definitely recommend to anyone who feels their accounts have been removed wrongly, when they were not breaking any rules, to fight for their accounts to be reinstated. I'm definitely proof that it works and that Facebook listens to it's users, and I can't be happier to say this! I had always told people how much I liked Facebook, and how after my account want removed, I had pretty much lost faith in the people running it (as had my parents when they found out my account was removed, as they know what I do online and visit my websites), but thankfully, I was wrong and I'm so glad I'm wrong (as is my father and mother). There are some decent people working there. =)

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    Now, I had a another thing I wanted to talk about, unrelated to the Facebook ordeal.

    Have any of you ever done something called "Project 365?" This is a photo-project, where a person will take one photo every day for a year and post it online. I've always found these very interesting and have been considering trying it out. Granted, being bedridden and stuck in the same room day in and day out, for me it could end up a very boring disaster, haha! I wonder if it would even be possible for someone in my situation to do and keep interesting? In the end, however, I would primarily be doing it for myself, to look back on later although I don't know if it's very realistic of me to think I could keep that going for a year, though. Maybe in my case I could do a...hmm... project 2 months and then see where I'm at in my life at that point and if I'm able to continue it?

    I'd love to hear from anyone who's done this before and how they liked it, if it was hard to do, or anything you'd like to share with me about doing it. ^_^

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     Photobucket

    This is a Recovery Buddy. I was made and given this by a very kind friend. I absolutely LOVE this little guy, he's so cute. ^_^ She's been working on a project called "Recovery Buddies" for people who are ill with eating disorders, to give them hope and a reminder that people care. I think this is such a sweet idea. She's not the only one working on the project (I'm not entirely sure how many people are working on it, although I am friends with two of them --both are absolutely amazing individuals). 

    I had put my pulse oximeter on him, he was looking a bit blue-ish so I wondered if he wasn't getting enough O2. silly

    --

    Hope everyone's doing as well as possible. Take care guys. <3

Wednesday, 13 April 2011

  • Alright, now I'm pissed...

    Original Post Made On: April 12th, 2011 at 11:05pm

    [There is an update regarding my Facebook below.]


     Hello world.

    It feels like it's been forever since I posted (I think I've probably said this in every single post I've made here in the past 3 years, haha). Well, I finally think I might be back on here for good. I have been wanting to get back to blogging for ages now, it seems, and I'm finally going to give it a shot again.

    For the past 2-3 years I'd been not blogging due to my health, which has been interfering greatly with my ability to get online. It's very difficult for me to get online, as well as stay online for very long as I have very little energy and am often not well enough to do much, so I won't be posting everyday, like I used to, but I do intend to start posting regularly. Here's hoping I'm able to get on long enough to keep up with this. I've really missed Xanga and just blogging in general.

    A -LOT- has happened since I was blogging on here, many things have changed for me (although some things have stayed the same). I'll offer a bit of an update for any old readers of my blog to read, if they like (if anyone's left, haha!).

    First, however, there is something I wish to discuss...

    This morning my Facebook account (which is the only account I used these days, and my only way of communicating with, well, ANYONE) was disabled. Perhaps for someone who isn't terminally ill, bedridden, has no life and has no offline friends this isn't a big deal, but my computer -and Facebook especially-, is my only window to the outside world --to human contact, to my friends. I went through the Terms of Service, the Rules, and Community Guidelines of Facebook to find out what the hell I did wrong, only to discover I did NOTHING wrong.

    Anyway, so I've written Facebook and asked them to return my account to me, as I've done nothing that warrants my account being disabled --no warning, no nothing. I was in the middle of replying to a close friend on her page (actually we'd been talking back and forth on one of her photos), and also talking to another friend who was feeling suicidal, trying to offer them support and convince them to seek help, when I went to submit a message and was promptly signed out and told my account has been disabled. I have no way of contacting most of the people I know on Facebook, so I can't even tell anyone what the hell happened. I. Am. Pissed.

    So, I'm hoping to hear back from Facebook soon and also hoping they will come to their senses and give my account back to me. Here's hoping. *sighs*

    If anyone reading this knows me on Facebook, I would really appreciate it if you could let anyone who knows me on there know what happened, and direct them to this blog. (Thanks in advance to anyone who does this!) (I am considering removing the sign-on lock, just for this purpose.)

    Now, off of this topic as it's really bringing me down and onto something else! ^_^

    Alright, updates...

    When I left Xanga and stopped posting, I had been moved from in-home hospice into a hospice facility for a little over a year. Thankfully, with help from my parents and the reconstruction of my old apartment to fit my medical needs, I was finally allowed to return home and go back on in-home hospice care instead of being stuck with a bunch of people that make me feel awful (I didn't get along with the other patients in the hospice --there were some very judgemental people, although it was the families of the patients who were the worst.) So, I'm back home and very happy about that.

    This photo was taken around the time I first got back home (in 2010, I believe). My apartment still wasn't totally finished being redone, but I was just excited to be home so I nabbed a photo.

     

    Photobucket

    It isn't much, but it was such a welcome sight after being stuck in that hospice facility for so long. I dislike staying anywhere but in my home and my parents and I have been fighting for many years to keep me at home, as it is where I am most comfortable.

    My place looks quite a bit different now. We moved the hospital bed into my living room, as that is the room that is the most active (I have to have someone with me 24/7 to help care for me, most often it's one of my parents, but I also have three different staff who also spend a lot of time with me). I am bedridden, so needless to say, I'm always stuck in that bed and can't do much, so I wanted to be out where the action was in my home so I could watch what all was going on. I always felt lonely in the back room, as if I were just "put away" and left. It's much nicer to be out in the living room.

     

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    This is Momoko, my beautiful kitty (Momo, for short). She spends nearly all of her time in bed with me. She's so perfect, I couldn't have asked for a better companion. She's around 5 - 7 years old this year (I don't have an exact age, as I was lied to when I got her. I was told she was 1 year old, but my vet said she's more like 4 years old). I have two other cats, Mutan and Kii, for those who aren't familiar with me. I took her away from an abusive household and when I got her, she had been skin and bones --it was so sad to look at her. Now she's a very chubby, happy and loving cat and is no longer afraid. She knows she is safe now, and has been living comfortably ever since I got her. <3 Like all my beautiful animals, she is my life.

    One of my favorite things about her is that she loves when I hold her front paws in my hands. Often she will grab a hold of me and pull at my hands until I hold her paw, then she will relax and drift off to sleep. It's so cute. ^_^

     

    Photobucket

    Random picture, yes. I decided to make my nasal cannula look pretty. ^_^ It was quite fun to make. I'm working on another one currently.

     

    I don't have much time left to write, as I have to take my next dose of pain medications, and they often knock me out for a while. I'm glad to be back on here, and hope I'll be able to keep up with posting now. I missed blogging quite a bit. Not sure if anyone will be interested in my ramblings anymore, but that's not so important, really. I enjoyed blogging just for the sake of keeping myself a personal history, and I enjoy reading other people's blogs. However, if someone finds my posts entertaining or helpful in any way, that is always a bonus. ^_^

    To my dear friends, I hope you are all hanging in there. <3 Miss you already. Here's hoping I'll be able to get back on my Facebook account (if not, I'll be making a new one and trying to find everyone on there. Either way, I will not leave you all.)

    UPDATE [April 13th, 2011 at 7:55pm] --- [Regarding Facebook]

    I just want to add on here that I am currently using a temporary Facebook and have sent out a bunch of invites to many of my friends who had been on my other Facebook. My name on there should show up as "Ronny 'BonyPink' Bi." Just letting everyone know that it's indeed me, and not someone impersonating me!

    If I haven't sent you a request and you want to add me, you may >click here< and be sent to my new Facebook profile. I'll be using this one until I get my old one back, and if I don't get it back it will become my new account.

Monday, 10 January 2011

  • Damn, it's been a LONG time.

    Hello....if anyone still comes here, haha.

    I've been wanting to write on here for SO long, I really miss being on Xanga like I once was. It's taken me forever to get this post done! (I've been making this post over the course of about two months.)

    I'm very sorry for being gone so long, and I'm not entirely back, either. I'm just writing to tell anyone who may not be on my facebook that I am still alive (surprisingly, haha) and that I do try to get online as much as possible (however I've not been able to do much lately). I haven't had the time or energy to get on here to write, due to my health issues (which have gotten much worse since I was last on here).

    Around the time of my last post I had to leave my home to receive 24 hour care, as my health took a nosedive and for a while it looked like I was not going to be coming back, but eventually (after a little over a year, I believe) I was finally moved back home and back onto in-home hospice care, on the condition that I receive 24 hour care at home, and also on the condition that my apartment got redone with all of the medical equipment, life support systems and devices that are needed to keep me alive and kicking (otherwise I would be stuck in a facility for my remaining time, which my parents are doing everything in their power to keep from happening). Unfortunately, my energy levels are VERY low and I don't get online very often, especially compared to how often I used to be on the computer (honestly, I think the worst part of all of this, for me, is that I don't get online as much, haha!).

    Currently, I'm working with some new doctors, one of whom is truly amazing, so far and we are trying to do whatever is possible to keep me comfortable and in as little pain as possible.

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    Also, to any pro-anas who may happen across this entry;

    I am dying because of anorexia nervosa. I'm stuck on hospice, bedridden, on life support and have multi-organ failure (along with a very long list of other health problems. If I ever get the energy, I'll end up putting a list up here) all because of my eating disorder. This is why I was offline so long, this is why I need 24 hour care, this is why my parents will lose their only daughter (only offspring), why I have no teeth, why I'm in diapers, why I have intestines outside of my body and why I am in constant pain even with high doses of narcotics. This is your future. This is also why I have never seen myself as thin -regardless of my weight-, and why I've never been happy with myself -and why I never will be. If you don't stop what you are doing (and I am saying stop instead of "recover," because 98% of pro-anas don't have eating disorders to recover from, and putting them in an eating disorder treatment program doesn't do anyone any good and just wastes beds that could be given to people who need them - that being said, I still feel they need help, but just not for an eating disorder), you'll end up in my situation. There is absolutely -NOTHING- desirable about having/emulating/feigning an eating disorder.

    To anyone with a genuine eating disorder;

    Please seek out help while you still can. Staying like this will only put you in a coffin (after suffering horribly) and destroy those who care about you. You -don't- want to end up terminally ill and stuck living your final days out in extreme pain because of an eating disorder that you could have gotten help for. Please get help before it's too late and you end up in my situation, or worse. You deserve to enjoy your life and feel comfortable in your own skin.

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    For those who wish to stay in contact with me (as it could be quite a long time before I return here), the only account I'm able to spend time on anymore is my Facebook. If you wish to add me, please send me a message telling me; who you are, if we know each other from somewhere (tell me how we know each other), why you'd like to add me and also please tell me a little about yourself. (By the way, I don't add pro-anas, or anyone who supports them. I prefer not to aid people in killing themselves, thank you.) Keep in mind, however, that I can't get online every day anymore, and I may take a while to answer.

     

    Anyway, I'm on a time clock, as I'm about to pass out again, but I wanted to sign in here to tell anyone out there who may still remember me that I'm actually still alive --however, I just can't get online as much, anymore. Sorry about that. I -will- try to get online as much as I can, though.

    Take care, everyone.<3

Wednesday, 15 July 2009

Monday, 02 March 2009